Guide to the Patricia Clapp Papers, 1947-2015, MSS 1196

Repository
Heinz History Center
Title
Patricia Clapp Papers
Collection Number
MSS 1196
Extent
2.25 linear feet 2 boxes and 1 shelf volume
Date
1947-2019
Abstract
Patricia "Pat" Clapp is an advocate for individuals with intellectual and developmental disabilities. As a member of organizations in Pennsylvania, Virginia, and North Carolina, Clapp attended events, gave speeches, and received countless pieces of correspondence and news clippings regarding her work. The Patricia Clapp Papers contain correspondence, news clippings, award certificates, event programs, copies of speeches, and images throughout Clapp's life as an advocate. A portion of this collection has been digitized and can be found online.
Language
The material in this collection is in English.
Author
The guide to this collection was written by Bryan Brown.
Sponsor
The acquisition and processing of this collection has been made possible by the Western Pennsylvania Disability History and Action Consortium (https://www.wpdhac.org/).
Publisher
Heinz History Center
Address
1212 Smallman St.
Pittsburgh, Pennsylvania 15222
library@heinzhistorycenter.org
URL: https://www.heinzhistorycenter.org

History

Patricia "Pat" Etta Clapp was born in 1929, to Adam and Inez Fornof in Wilkinsburg, Pennsylvania. Clapp graduated from Wilkinsburg High School in 1947. After graduation, she worked at Mayview State Hospital in the Occupational Therapy Department. In 1952, Pat married Harry Patterson Clapp, an engineer from Greensboro, North Carolina. Clapp's advocacy began in the early 1950s when she joined the Junior Section of the Wilkinsburg Women's Club of the General Federation of Women's Clubs (GFWC). This local club had learned through a guest speaker at their meeting that a child was being denied entry to public school because the child had Down syndrome. Galvanized to address this need for local children, Clapp and fellow Junior Section members raised funds to support the opening of a preschool for children with intellectual and developmental disabilities. Performing in a fund-raising revue, these young women raised $2,000 for this cause. They donated the funds to the Allegheny County Chapter of the Pennsylvania Association for Retarded Children (ACC-PARC, now Achieva), which in turn opened the Wilkinsburg Pre-School for Mentally Retarded Children at South Avenue Methodist Church in Wilkinsburg in 1953. It was the first of thirteen pre-schools for children with intellectual and developmental disabilities started by ACC-PARC in Allegheny County. Clapp worked at the pre-school as a volunteer. Together with Junior Section members, Clapp also launched a National Crusade for Change among Junior Section GFWCs to develop programs for people with intellectual and developmental disabilities in every community.

Pat and Harry Clapp had three children together: Jeff, Jean, and David. With the arrival of David in 1955, the Clapps entered the world of having a child with intellectual and developmental disabilities, as David was born with Down syndrome. The Clapps refrained from telling others of David's condition until 1961 when Pat listened to Dr. Ted Johnson give a speech to the Junior Section of the GFWC regarding his life as a father of a child with intellectual and developmental disabilities. Around 1959, when David was ready to attend preschool, Clapp began volunteering with the statewide PARC (now the Arc of Pennsylvania and the ACC-PARC).

Clapp's involvement with ACC-PARC and PARC grew over time, Governor Scranton appointed her to the Board of Directors for the Western State School in 1963. Clapp served as president of ACC-PARC for the years 1964 through 1966. Clapp eventually became president of PARC from 1971 until 1973. During her tenure as president, PARC campaigned for the right to equal education for children with intellectual and developmental disabilities. During this time, public schools were entitled to deny children with intellectual disabilities the right to attend their schools and recommended parents institutionalize their children. The Clapps experienced this first-hand with their son, David. When they reached out to the American Medical Association for information about the best services for him, they received a letter telling them there was "no chance that the condition can be improved." Like most parents of children with Down syndrome in that era, Clapp and her husband Harry were advised to institutionalize their youngest son. The Clapps refused and chose to use Pat's position as president of PARC to fight for equal education for all children with intellectual and developmental disabilities in Pennsylvania. The court case PARC v. Commonwealth of Pennsylvania lasted between 1971 and 1972, and featured parents of children with intellectual disabilities denied free public education suing the state. The case settled in 1972 with a consent decree that stated that no child between the ages of 6 and 21 would be denied an education based on their intellectual or developmental disability. Due to the decree and PARC's efforts, it laid the foundation for Federal Public Law 94-142, Education for All Handicapped Children Act of 1975, later renamed the "Individuals with Disabilities Education Act" (IDEA).

During Clapp's tenure as president of PARC, she also fought to eliminate the involuntary testing of vaccines on individuals with intellectual and developmental disabilities living in state-run institutions. Institutions across the state used people with intellectual and developmental disabilities as test subjects for vaccines, without their parents' knowledge or permission (sometimes parents received a permission form from the institution after the experiment). Vaccines tested for meningitis, pneumococcal pneumonia, and the flu were among those tested. Girls within the institutions were given a birth-control "shot" against their will. With pressure from PARC and public opinion, the practice of testing of vaccines on children with intellectual and developmental disabilities in state-run institutions ended in 1973. Throughout her career, Clapp was also known for creating opportunities for young people to build relationships with people with intellectual and developmental disabilities. Such initiatives include the HOPE Corps and the Youth PARC.

In her role as president of PARC, Clapp contributed to the Deinstitutionalization Movement, which transitioned people with intellectual and developmental disabilities from state-run institutions to community-based living arrangements. During this era, Clapp learned from ACC-PARC of horrid living conditions at Polk State School and Hospital in Venango County. Clapp ensured that Helene Wohlgemuth, the state public welfare secretary, visited Polk. Wohlgemuth witnessed the use of wooden cages and restraints that housed residents considered by staff to be "unruly." Thanks to the attention drawn by advocates, Wohlgemuth also noted that the overcrowded and understaffed institution used drugs to sedate patients. Three days after her visit, Wohlgemuth wrote a letter to James H. McClelland, director of the institution, informing him that he was dismissed from his role. PARC and ACC-PARC supported this decision. For those supportive of McClelland, Wohlgemuth's decision sparked outrage. Linking this action to ACC-PARC and PARC's unannounced site visits to Polk, people opposing McClelland's dismissal hanged Pat Clapp and fellow PARC advocate Eleanor Elkin in effigy.

In 1976, Governor Shapp appointed Clapp to the Developmental Disabilities Planning Council. Following this appointment, Clapp remained active with PARC as the organization witnessed the closure of institutions like Pennhurst State School and Hospital across the state. In 1979, the Clapp family moved to Virginia. While in Virginia, Pat involved herself with the Northern Virginia Association for Retarded Children (No. Va. ARC), now known as The Arc of Northern Virginia. Clapp remained active with the organization until she moved with her family to North Carolina, following Harry's retirement. Clapp continued her work as an advocate with the Association for Retarded Citizens of Greensboro, Inc. (now known as The Arc of Greensboro) and The Arc of North Carolina following the move.

In compliance with its affiliation with the national organization, the Pennsylvania Association for Retarded Children changed its name to the Pennsylvania Association for Retarded Citizens between the years 1973 and 1981. In 1992, the organization changed its name to its current name of The Arc of Pennsylvania. The ACC-PARC followed similar name changes and became known as the Arc of Allegheny County. As of the writing of this finding aid, the Arc of Allegheny, Beaver, and Westmoreland Counties are child organizations of ACHIEVA.

Scope and Content Notes

The Patricia Clapp Papers contain records collected and created by Clapp throughout her career as an advocate for people with intellectual and developmental disabilities in Western Pennsylvania. Records include newsletters from the organizations she was involved with or interacted with (PARC, ACC-PARC, etc.); newspaper clippings regarding her, her son David, and the work of the organizations she was involved with (including coverage on the Pennhurst State School and Polk State School and Hospital); correspondence from organizations and individuals involved with her campaigns for equal treatment for people with intellectual and developmental disabilities; awards and certificates received throughout her career; and photographs of individuals and events.

This collection contains one folder of materials related to Clapp's personal life: a newspaper announcement of her wedding, a Good Housekeeping article, and notes regarding the care for her mother.

Arrangement

The Patricia Clapp Papers are arranged topically by organization or cause that Clapp was involved with in one box and one shelf volume.

Conditions Governing Access

Materials with personally identifying information regarding minors with intellectual and developmental disabilities and their parents were redacted and separated from the collection.

Immediate Source of Acquisition

Gifts from Patricia "Pat" Clapp on April 2019 and April 2021.

Archives accessions # 2019.0060 and 2021.0059

Preferred Citation

Patricia Clapp Papers, 1947-2019, MSS 1196, Thomas and Katherine Detre Library and Archives, Heinz History Center

Separated Materials

Disabled American Veterans Sterling Morelock Honorary Dinner, c. 1922-1930, OFF 121, Thomas and Katherine Detre Library and Archives, Senator John Heinz History Center. (This photograph includes Pat Clapp's father, Adam Fornof, who was in attendance at the dinner.)

Related Materials

Papers maintained by Pat Clapp concerning the closing of Pennhurst State School and Hospital are in the custody of the Pennhurst Memorial and Preservation Alliance. These papers also concern Clapp's involvement in creating and helping to lead a youth movement under the auspices of PARC.

Copies of legal filings and related reference materials maintained by Pat Clapp on PARC v. The Commonwealth of Pennsylvania (Right to Education case) and other Pennsylvania cases concerning disability rights have been transferred to the Public Interest Law Center of Philadelphia (PILC). Selected records of PILC are maintained by Temple University's Special Collections Research Center.

Bob Nelkin Collections of Allegheny County Chapter of the Pennsylvania Association for Retarded Children (ACC-PARC) Records, 1953-2000, MSS 1002, Thomas and Katherine Detre Library and Archives, Senator John Heinz History Center

Pennsylvania Association for Retarded Children, Allegheny County Chapter Records, 1952-1965, AIS.1966.01, Archives Service Center, University of Pittsburgh.

Processing Information

This collection was processed by Bryan Brown in April 2019. Additions to the collection were processed by Bryan Brown in June 2021.

Conditions Governing Use

Property rights reside with the Senator John Heinz History Center. Literary rights are retained by the creators of the records and their heirs. For permission to reproduce or publish, please contact the Thomas and Katherine Detre Library and Archives of the Senator John Heinz History Center.

Existence and Location of Copies

A portion of this collection has been digitized and can be found online.

Subjects

    Corporate Names

    • Association for Retarded Citizens (U.S.)

    Other Subjects

    • Children with disabilities -- Pennsylvania -- Pittsburgh
    • Children with disabilities -- Pennsylvania
    • Children with disabilities -- Virginia
    • Children with disabilities -- North Carolina
    • State hospitals -- Pennsylvania
    • Intellectual disability facilities -- Pennsylvania
    • Right to education--Pennsylvania
    • People with mental disabilities--Pennsylvania.
    • People with mental disabilities--Virginia.
    • People with mental disabilities--North Carolina.

Container List

Youth PARC and Youth NARC Correspondence, Newsletter, and Orientation Handbook, 1972-1976
Containers
Box 1, Folder 22
New Life in the Neighborhood: How Persons with Retardation or Other Disabilities Can Help Make a Good Community Better , 1980
Containers
Box 1, Folder 25
NARC/PARC Binder, 1963-2015
Containers
Box 1, Folder 26
Advocacy Clippings and Programs Scrapbook, 1960-2015
Containers
Shelf 1, volume 1
Resumes and Biographies, 1974-1999
Containers
Box 1, Folder 29
International Laws and Scientific Studies, 2006-2014
Containers
Box 1, Folder 30
Western PA Disability History and Action Consortium and From Wrongs to Rights, c. 2009-2013
Containers
Box 1, Folder 31
No. VA ARC/The Arc of Northern Virginia Correspondence and Organization Records, 1972-1981
Containers
Box 1, Folder 32
The Arc of North Carolina Correspondence, Conference Materials, Publicity, and Awards, 1989-1999
Containers
Box 1, Folder 33
Against Their Will Book Correspondence, Notes, and Publicity, 2011-2013
Containers
Box 1, Folder 34
News Clippings and Personal Notes, 1952-1994
Containers
Box 1, Folder 36
PARC Correspondence - From Box 1, Folder 5 - Restricted, 1972-2013
Containers
Box 2, Folder 1
Polk Correspondence - From Box 1, Folder 13 - Restricted, 1973
Containers
Box 2, Folder 2